My Creative Mind

My Creative Mind

Thursday, October 05, 2006

"He told me to tell you: "Everything is OK" "

In mom talk that usually means:
I don't believe you, so how about you giving me the whole story
so I can decide if everything is OK.

For us there is nothing worse than to get a call from someone telling us our youngest son is "OK" ~ the red flags pop up and wave with gale force winds...just give me the details as thoroughly and quickly as you can.

We know each day is a gift when we think about this young man who has overcome various health issues in his young life from day one to today~ten days before his 25th birthday. He didn't come home from the hospital when I did following following his birth, as a toddler and preschool child his playmates were his Nurses, Doctors and other hospital staff. He slept more nights in a hospital bed than his own during his first 3 years. During our boys' school years we planned our vacations around surgeries and/or hospitalizations. He is no stranger to a Dr's office or emergency room.

Last night we got one of those "Everything is OK" phone calls. Ryan was born with Marfans, has a heart condition, pectus excavatum and his body looks like a tic-tac-toe board from his many and various surgeries. He is very good about taking care of himself, taking his meds, getting his check ups and etc. He knows when the slightest changes take place and which changes warrant a trip to the Dr, urgent care, or ER. Yesterday it was a trip to the ER.

He is fortunate to have a cardiologist who is well versed in Marfans treatment. Dr ran all the tests - didn't like the way some of them turned out and decided to keep Ryan overnight for observation and run more tests this morning. He was admitted to the cardiology unit and was hooked up to monitors and etc.

We got online and checked airfare and flight times last night. We knew we would go if needed and he knew we would be there if he asked us to be there. Ed wasn't sure he could make the trip due to his recent surgery so we thought about flying our oldest son, Roy, from Seattle to San Diego. My sister decided Ryan could not have surgery without her there (there is a story behind this!!! and someday you might hear it) I cancelled my business trip and we spent the night and this morning sitting by the phone waiting to hear something, caught between don't wait - just go and wait - we need more information.

More tests today, and all of them "inconclusive". Ryan was released from the hospital late this afternoon and hopefully he is at home sleeping. He left his phone at the office yesterday but he said he would borrow a phone and call us tonight.

Today Ed and I held each other, prayed, drew strength from my sister, Nancy (thanks for being there for us!) and our oldest son, Roy. Ed paced while I put my anxious energy to work by cleaning, doing laundry and sewing and sewing and sewing.

Sherrie, thank you so much! You are a great second mom for Ryan, and we know that boy-o needs more than one!!! That Ryan, he will give you gray hair, this I know, this I have proof of!

Nancy, thank you for always being there when I call and cry, and then laugh, and then cry some more....Thank you for laughing and crying with me....I love you. Today you can be both the SO and the PO, because you are!


At Thursday, October 05, 2006 6:57:00 PM, Blogger Linda_J said...

what a nerve racking couple of days for you all. Hope he is feeling better upon the hospital release or they would not have let him loose?

At Thursday, October 05, 2006 7:32:00 PM, Blogger Norma said...

I will continue to hold you and your son in my thoughts and prayers.

At Thursday, October 05, 2006 8:18:00 PM, Blogger Jeanne said...

Keeping you all in my thoughts and prayers.

At Thursday, October 05, 2006 8:27:00 PM, Blogger Evelyn aka Starfishy said...

Oh gosh - you must have nerves of steel not to be completely fallen apart by now. Hang in there -sounds like he has taken a turn for the better at least.



At Thursday, October 05, 2006 8:29:00 PM, Blogger quiltpixie said...

Its so very hard to sit/stand by when there is absolutley nothing you can do except pray. But know that that is a worthwhile and important activity... :-)

At Friday, October 06, 2006 6:37:00 AM, Blogger Gail said...

This sort of thing is dreadful when you can be there in person. Long distance just adds to the nightmare. Prayers for your son and his loving family.

At Friday, October 06, 2006 7:59:00 AM, Blogger Nancy said...

(((HUGS))) to you and prayers for your son and the rest of your family.

At Friday, October 06, 2006 2:51:00 PM, Blogger EileenKNY said...

What an extraordinary young man he must be!!! Your family sounds like a loving and close knit group. You will be in my thoughts.

At Friday, October 06, 2006 3:03:00 PM, Blogger Laurie Ann said...

Sending prayers for your family!!! Keep us up to date!

At Friday, October 06, 2006 4:41:00 PM, Blogger Sweet P said...

I'm also sending prayers for strength, patience and lots of love for you and your family.

At Friday, October 06, 2006 9:21:00 PM, Blogger Patti said...

Sending positive healing thoughts and prayers your way for your entire family.


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